Phoebe Rohrbacher is an artist and former facilitator at The Canvas in Juneau, who is currently living and working in Fairbanks, Alaska. A lifelong Alaskan (born and raised in Juneau), Rohrbacher has a unique perspective on art and disability in rural and remote communities...Read More
Since our recent post-election essay regarding art and disability advocacy, we've received several inquiries about supporting disability rights and national organizations that are working for this cause.
First and foremost, your local progressive art studio is a great place to start; the progressive art studios listed in our directory are primarily small non-profits that depend on the support of their local community to exist. Donating directly to these organizations, attending exhibitions, and buying artwork are great ways to support these studios and this important work. Going to these programs with discerning criticism, and finding works of art that you love to collect and live with is a powerful way to integrate disability (disparate thinking) into your life in a manner that’s personal and authentic. If there’s a progressive art studio in your community, you will almost certainly find that some of the most original and authentic art being made locally is being created in that studio and is remarkably affordable.
Apart from progressive art studios, there are many organizations throughout the country that provide services, research and education, or public policy advocacy. It's often difficult to differentiate between which organizations to endorse and support, because they sometimes espouse regressive ideas and practices. Philosophically, there are many areas where advocates are far from a consensus, and worse, there are non-profits that are actually exploitative; researching an organization's mission and history beforehand is vital.
Two important measures of the quality of a disability service or advocacy organization are:
- How prominently disabled individuals, their ideas, and voices are included in the organization's composition, message, and presentation
- How prominently the organization focuses on inclusion, acceptance, and support services, as opposed to prevention, intervention, or “cures”
Our recommendation on a national scale is to direct your support to an agency advocating for disabled people that is a paragon of these principles and an ideal example of what a disability advocacy effort should embody: the Autistic Self Advocacy Network.
Although ASAN’s foundation is specific to Autism, they’re the most progressive disability rights agency of their type and scale in the country that we’re aware of - by and for disabled people, an essential principle expressed in their slogan “nothing about us without us.” Co-founded by dedicated advocate Ari Ne’eman, it’s a fantastic resource for detailed information and news regarding disability advocacy. Donations to ASAN will support public policy advocacy, and disability advocacy education that you can trust to serve the needs of the disabled.
“ASAN advocates specific policy positions on issues of importance to Autistic people and others with disabilities. In so doing, we seek to ensure the meaningful involvement of Autistic individuals in making policy at all levels, to promote a culture of inclusion and respect for all, to enforce the rights of Autistic people to equal opportunity at school and at work, and to improve funding for community services and supports along with research into how they can best be provided.”
Another great project to support is the Disbability Visability Project:
Whereas ASAN focuses on affecting policy, the Disability Visibility Project focuses on activism, media, and affecting culture by publishing stories and organizing conversations - a fierce and ambitious effort to place disability voices at the forefront. Founder Alice Wong explains: